Talking About The Cancer

No, this will not be the dreaded foot-in-mouth post with the long list of “don’t say this to someone with cancer” things that people say to you when they find out you have cancer. You can relax, big sis. (She was really worried I would write about her, and wanted a warning before being publicly embarrassed. Honestly, big sis, you’re awesome.)

Look, who puts their foot in their mouth more than I do? Nobody, that’s who. And, what DO you say to someone who has cancer? Like, I’m sorry, that’s awful…and then? Like, how do you finish that conversation when you’re done with it? We’ll be praying for you, if you do that sort of thing, which most people in Seattle do not…good luck? I mean, the whole fucking thing is completely awkward.

Which is why I’m going to say this. I give everyone I speak to about my cancer a free pass to react however they’re gonna react and say whatever they’re gonna say. Nothing they can say will make me angry. Mildly bemused, perhaps. But not angry. Because, in the end, is it their fault I have cancer? No, it’s the cancer’ fault. I am angry at the cancer, and I will destroy the cancer with my rage. I can’t be wasting my energy on well-meaning people who say the wrong thing when faced with a completely awkward conversation.

I’m probably selling out my fellow cancer peeps with this attitude, because I have read some humdingers of articles by cancer survivors calling out all the dumb shit people have said that hurt their feelings. And hey, if it helps them direct their anger in a way they find productive, then rock on, the world could always use less awkwardness. I just don’t feel that way. I did about having a preemie and the stupid shit people would say, but I don’t now.

The other thing I keep in mind is that, although I am indeed the one with the cancer, this shit impacts a lot of people. Obviously my family, but also my friends, my coworkers, my neighbors, just so many people, who care about me and want me to get well. All of that love and caring is so incredibly powerful. It makes the feet in mouths seem so trivial in comparison.

You guys know that I am not a religious person at all, but I once heard a rabbi say that he believes that what God is, that ALL that God is, is our connections with each other. That when we feel those connections, that is how we experience God. That idea has stuck with me over the years, and in fact, it’s the only explanation for the supernatural that has ever made any damn sense to me. A god who is all-powerful and decides to smite little children with cancer? What a douche, why would you worship an asshole like that? But our connections with each other, when we aren’t alone? THAT is something I can get behind, and something I have experienced throughout this cancer journey, which I am only just beginning. I am more grateful than I can even begin to express for those connections, because they give me so much strength. They make me cry happy tears instead of scared ones.

So, don’t worry about saying the wrong thing to me. Don’t worry about conversations being awkward. I’m just glad you are here with me.

Picky Eating

When I was a kid, I was a very picky eater. I became less so when I went off to college and wanted to impress my friends, who didn’t think it was cool to be a picky eater, but I’m still not a fan of certain foods, like pot pie. I feel like pot pie is where you take perfectly lovely meat and/or vegetables and you coat them in goo made of who knows what and then top the whole thing with a pie crust, which also isn’t my favorite food to eat. (Although, it’s one of my favorite foods to make–rolling out a pie crust is so soothing to me. I know, I’m odd.) One time when I was little, my mom made pot pie, and as usual I refused to eat it, so my parents told me I had to sit in front of that pot pie until I ate it. I sat there for probably 2 hours, until it was bedtime, at which point they sent me to bed without offering any other food. I didn’t care if I was hungry, that didn’t matter to me. What mattered to me was that I was not going to eat that pot pie. And I didn’t.

After that, my mom didn’t serve pot pie very often, because she knew I wasn’t going to eat it. She’d try to get me to eat foods I didn’t like, but if I refused, she’d just make sure there was something on the plate I’d eat. In short, she adapted her meal choices in part to suit her picky eater. Nowadays, that’s frowned upon by the Parent Education Industrial Complex. They say to just keep offering that food over and over again because eventually that kid will eat it. Apparently the Parent Education Industrial Complex doesn’t know what stubborn looks like. If my mom had offered me pot pie 1000 times I still would have said no to it. In hindsight, I think my mom made the wise choice to feed me things I would eat, so that I could grow, rather than watching me not eat every night. I was literally that stubborn. I needed to come to the idea of eating outside my comfort zone in my own time and in my own way. And, I’ve never struggled with obesity or eating disorders, so, I’m pretty sure she made the right choice for me.

The Boy is a picky eater too. I think he may even be pickier than I was, because he won’t eat chicken nuggets anymore. He wasn’t always a picky eater–when he was 2, he’d eat Indian food and jambalaya and all kinds of stuff. Now, it’s easier to tell people what he will eat instead of what he won’t because it’s a shorter list. I tend to do what my mom did and offer foods not on his “I will eat that” list, but when he refuses, I provide something we know he’ll eat. Especially now that he’s on ADHD meds that can affect his appetite and slow his growth.

I feel like I’m going to be judged for that, because it’s not what the experts recommend, and I’m sure people will say “He’s never going to learn to like other foods if you only feed him stuff he likes.” In fact, I have friends who brag about the foods their kids will eat that I know The Boy would adamantly refuse to try. But then I remember, parenting isn’t a competition. And I also remember what it felt like to be that kid who didn’t want to eat the pot pie with the weird goo in it (Mom, I’m sorry I keep calling it goo as though you’re a bad chef–I’m sure it was a lovely gravy to anyone who isn’t so picky!), and wishing I could just have food that didn’t weird me out, and being excited to eat when my mom made foods I did like. I guess I just feel like maybe there isn’t one right way to approach the complex relationship that kids have with food in our society. Because every kid is different, and some kids, like me, are never going to eat pot pie, and that’s OK.

My Cancer

So, the cancer. Let me give you the rundown of how this has all gone down so far.

On March 18, during a breast self exam in the shower, I found a lump in my left breast. I’d say my immediate reaction was disbelief. It was like 5:30 in the morning, and The Hubs was still sleeping, and waking him up with “Honey can you feel that lump in my breast” was not something I wanted to do, so I went to work and tried not to think about it. I had case meetings and was super productive.

When I left work, I couldn’t distract myself with complex projects anymore, so I went to our car in the parking garage in The Hubs’ building to wait for him, and while I waited, I felt for the lump again. And there it was, right where I had found it the morning before, at the bottom of my left breast, right where the band of my bra sits. And then I started crying.

When The Hubs got in the car, I told him. And he hugged me and said, “Have you been carrying this around all day?” And I said yes. And he said “It’s OK, we got this. We got this.” Have I ever mentioned that he’s a fucking saint? Because he is. I don’t even have words to express what he means to me.

That night, I told my best friends, including my college BFF, whose awesome mother-in-law died of breast cancer. (SO UNFAIR, practically nobody has an awesome mother-in-law and hers has to die?!?! You see why I think cancer is such an asshole?) Everyone was supportive, because I have awesome people in my life.

The next day, right when they opened, I called my doctor’s office to make an appointment. Of course, my doc was booked up that whole day, so I saw her the following afternoon–that brings us up to Thursday. I also woke up that morning with an insanely sore hip, like, it hurt to put pressure on it. The Hubs came with me to the appointment, and we told the doctor about the lump and the hip. She sent me for a hip X-Ray, which came back negative and so she said “if it’s not better in a few days, see about starting PT.” She also wrote me a referral to a local breast clinic that does mammograms and ultrasounds and all that.

So, I call the breast clinic, and the only time I could get in that week was on Friday at 8AM, which conflicted with our first medication review appointment for The Boy’s ADHD meds. So, I schedule for 8AM on Monday instead. This would be the first of many weekends I would spend trying not to worry about what a test on Monday would show.

I’m going to now share a pro-tip I learned while on bed rest in the hospital after my water broke before The Boy was born. When you have a ultrasound, and the tech says, “I’m going to bring in the radiologist,” that’s a sign you’re about to hear bad news. It’s even worse if the radiologist spends a long time using the ultrasound wand. Both of those things happened that Monday. And I knew. I knew right then that I had cancer. I didn’t need a biopsy report. I didn’t even need the radiologist, a very kind woman, to say “It looks extremely suspicious and we need to do a needle biopsy right away. Do you have time right now?” I cried, quietly at first but with more force when they took me into the wig room (THE FUCKING WIG ROOM) so I would have a quiet place to call my husband while they set up for the needle biopsy. And after the biopsy, she walked me across the hall to make an appointment with a surgeon for Wednesday, when the biopsy results would be back.

After that, I cried some more, and called a bunch of people. My college BFF, even though it was her dead mother-in-law’s birthday. My dear friend and cruise buddy who survived breast cancer in her 40’s. And then I went to work. I mostly sat at my desk and stared into space, or cried. I talked to my sister too. I went home that night and cried some more, and barely slept, and took Tuesday off from work.

And then came the big day, Wednesday, March 26. When the kind radiologist called that morning, she didn’t surprise me with the news that it was cancer, and that it was in a lymph gland. What surprised me was that it was a form of cancer that is extremely rare in the breast. It’s called neuroendocrine cancer, and if you google it and “breast” you’ll find that there’s practically no research on it because it’s so uncommon, let alone in women as young as me. They aren’t even sure the best way to treat it.

I met that afternoon with the surgeon, another very kind woman, who talked to me about the cancer, how big it was, where it was, and how treatment can work. While we talked, her staff were busy setting up zillions of tests for me, so when I walked out of her office, we had a plan for next steps.

The Parenting Industrial Complex

When I was pregnant with The Boy, we received a lot of parenting books. We got one on raising little scientists, and one on raising an emotionally intelligent child, and…I don’t even know, because I didn’t read a damn one of them. I just don’t put a lot of stock in what books say about how to raise a kid, because, every kid is different. My two kids are nothing like each other, so if I followed what a book said about how to raise them, I’d be doing it right for one and not the other, because they just  need really different parenting techniques.

The only parenting book I’ve actually read is one about getting your kid to sleep, because The Girl is 2 and she still will not fucking sleep through the night. I mean, some nights she does, and then other nights she’s up crying every couple of hours for no fucking reason. I am so fucking tired that I got desperate and read this book, and you know what? She’s still not fucking sleeping through the night. I’m so fucking tired…where was I? Oh yes, parenting books. Reading that book about sleep taught me one thing: even a good parenting book (and this one wasn’t bad) can’t always solve your parenting problems. At best it can give you some ideas to try, one of which might help you.

And at worst, it will make you feel like shit. It will make you feel guilty for doing things differently than the author suggested. And it will make you feel like you must be a bad parent, because its “scientifically proven” parenting methods didn’t work on your child. It’s especially shitty for parents of kids with disabilities–way to make parents who already feel “not normal” feel even more so, you jerk!

I call the parenting book industry the Parenting Industrial Complex. Because, it’s actually not just books, it’s also products. They make you think that if you buy this book, or that baby carrier, or that high chair, or those diapers, or that crib bedding, or this stroller, or those toys, that your child’s life will be better, and that your job as a parent will be easier, and that everyone in your family will magically be happy. And if you don’t, your child’s life will be ruined, you’ll struggle at parenting, and everyone in your family will be miserable.

And it’s not just books and products either–the internet is filled with parenting advice articles. And they have awesome titles like “7 Ways You’re Making Your Child’s Tantrums Worse” or “The Top 10 Ways Moms Sabotage Their Child’s Potty Training” or “What This Mom Wished She Knew Before Her Teen Attempted Suicide.” What the fuck, internet? Like I don’t already have enough mom guilt to navigate, you gotta go with the “click here or your child could die” headlines? Seriously? And you know what? Those articles are so full of shit. I read a tantrum one the other day that said “Hug your child when they’re having a tantrum.” ORLY??? When The Girl is having a tantrum, she screams “DON’T TALK TO ME.” I’m pretty sure a hug is gonna make things worse. That’s some pretty fucking awful advice for my kid.

But crazy headlines like that are how the internet makes its money. Like, if I were trying to get this blog to get page hits, so I can sell advertising revenue, I have to turn the headline into something that’s going to draw people in. And as local TV news learned decades ago, scary headlines reel people in. Emotional manipulation sells, man. It sells better than an article that says “Who the hell knows what’s the best way to calm your toddler down? Every kid is different. Here’s 10 ideas, none of which may work for you, but that doesn’t mean you’re a bad parent.”

What we, you and I, have to do is to NOT click on those headlines, and instead click on the blogs and read the books and buy the products that aren’t sold to us based on our fears. We need to seek out the writers who say “I know you can do it if you just trust yourself. It won’t always be perfect, there will be pee on the floor, but you will get there.” There are plenty of them out there–we just have to cut through the click-bait and the guilt-books that the Parenting Industrial Complex are trying to sell us, and find the good stuff instead.

I have a good excuse to be flaking out on everything for a while

So, I got diagnosed with breast cancer on Wednesday.

No, that’s not the start of some sick joke.

Last week, I found a lump in my breast. They scanned it on Monday and said it looked extremely suspicious, so they did a needle biopsy. The results came in on Wednesday. As of last night, I am Stage III, with more tests to be run.

I’m now in doctor appointment hell. I am being poked, scanned, drawn on, and turned radioactive. So many people have squeezed my boob. SO MANY.

Right now, it looks like this will be a tough fight. Right now, things are dark here. But not as dark as the anger that is fueling my fight. Cancer doesn’t realize who it is fucking with. I will destroy it. I will strangle its babies, drown its pets, and burn its house down.

I will be blogging this, too. I can’t NOT write. But everything is a little raw at the moment, and I’m not ready to share them yet. Also, I’m literally at so many doctor appointments, it’s hard to find the time. So, expect some of my regular post topics for a bit longer.

I don’t say this enough, but I think you guys know just how much you, my readers, mean to me. I love you and I am grateful for you. I hope you’ll stick with me through this ride.

Mom Bloggers as Feminist Warriors

You know, I’ve been meaning to write this post for a while, because actually, this topic is what made me think “Hey, I should start a blog so I can write a post about that.” And then, like, I started writing and other stuff came out first instead of this topic, and I sort of forgot about it. In fact, I think maybe I thought I’d already written the post, but I hadn’t, I’d just talked about it. Chronic sleep exhaustion does funny things to your brain.

When I was in college, I was an unpaid fundraising intern for a feminist non-profit, and one of my duties was to help out at the annual fundraising dinner. Now, in DC, these events are suuuuuper common, but if you’re not from there, you’re probably not as familiar with what a big fundraising dinner is like. Basically, imagine the biggest hotel ballroom you’ve ever been in, filled with big round tables, and people in cocktail attire sitting at said tables eating a fairly generic chicken dinner and drinking Chardonnay while listening to people on a stage talking about how great the organization is that is hosting the dinner. That’s it, that’s basically the event. And, the tickets that get you the generic dinner are like, I dunno, $100 a person or whatever. This was 20 years ago and I don’t remember what the going rate was back then, but it was waaaay over my college student budget, but that’s OK because I was working the event, so I got in for free. A lot of the seats at our dinner were bought by wealthy and/or large companies that supported our cause, like, Nike bought a table at this dinner–that is, they paid for 10 seats. But then they didn’t send anyone, so their table sat empty, except for me and the other unpaid intern who was working the event with me. Which was awesome because then we got to drink all the wine for the table. (Actually, we just drank some of it and took the rest home with us.)

So, my job at the dinner was to staff the name tag table with the other intern, and hand out name tags to the guests as they arrived. At one point a short elderly woman walked up to the table in front of the other intern, who said, “Can I help you?” And the woman sneered, rolled her eyes and said, “Betty Friedan” in the most condescending voice I’ve ever heard. That’s when it registered in my brain that this woman was THE Betty Friedan, the one whose book I had read the previous spring for a women’s studies course. She DID look like the photo on the back of the book, except much older. I handed her name tag to her, and she took it without smiling or saying thank you. Clearly she’d been insulted that my co-intern hadn’t immediately recognized her and said, “Oh Ms. Friedan, we’re so glad you’re here, may I get you your name tag?” What a bitch. It totally shattered for me my hero-worship of the woman who many see as the mother of second-wave feminism because of that book, The Feminine Mystique.

And now I get to my point about mom blogging and feminism. Friedan’s book was about how women like her–educated, upper-class and upper-middle-class white women–felt being housewives in the post-World War II era. Here were women who in our era would be likely to be doctors or lawyers or hedge fund managers or CEOs, but in those days, the only career that was considered acceptable for them was homemaker. It wasn’t like today when women of that income and education can choose between a career in addition to motherhood, or choose to just stick with motherhood as their career. Instead, it was unseemly for women of that social strata to be gainfully employed once they were married, so, despite having degrees from prestigious colleges, they kept house and raised their kids, whether they felt fulfilled by that life or not.

What was radical about Friedan’s work wasn’t just that she was challenging the idea that the best thing for women is to be homemakers. What was radical, what was game-altering, was that she was talking about what women’s lives are really like. Not the idealized images we saw in advertising, and not an academic analysis, but what they were actually living. She was writing the truth of her experience, and using it to say, “This is why things have to change.” The personal became political, and women everywhere realized they didn’t have to pretend to be happy anymore, that they weren’t alone, that other women felt it too.

And THAT is exactly what mom blogging is. It is women writing the truth of their lives. They’re writing about the poop stains on the carpet, and the choice to let their kid eat the food that fell on the floor, and the frustration with their toddler who still WILL NOT SLEEP. It’s powerful stuff, and the reason it’s powerful is because it is the truth of their experience as women at this point in time, in history, in their lives. And when they do that, it gives other women license to say, “Hey, I feel that way too. I’m not a bad person for feeling this way–I’m not alone.” I really can’t say just how important that feeling is, the feeling that you’re not alone, and that it’s OK to feel the way you do, AND, that it’s to talk about what you’re living. That’s what Friedan gave us, and mom bloggers are keeping up that tradition.

So, keep rocking that mom blog, you guys. Speak your truth. Because you’re helping women everywhere to find their strength.

Children’s Television Survival Guide: The Good Night Show

It’s been a while since I’ve written a post for my Children’s Television Survival Guide, and that’s because there is a lot of really horrible children’s television that no amount of positive attitude or creative interpretation or irony can make palatable. Literally, children’s television is that bad. Especially the junk my kids have been watching lately, most of which has been driven by the tastes of The Boy. But recently I decided that we should go back to basics and start watching the Sprout channel again. Now, that’s dangerous, because they show Caillou. But if you can figure out when that crap is on and avoid watching it during those hours, it’s actually not a horrible line-up. Our favorite time to watch is at the start of The Good Night Show, which is the subject of today’s post.

Basically, the set up of the show is that Nina, the host, is hanging around a tree house in her PJs (don’t worry, they’re tasteful) with a stuffed-animal-puppet named Star, who is, unsurprisingly, shaped like a star. Nina and Star engage in witty banter…OK, not really, they just chat about whatever the topic of the day is, and then introduce the cartoons. Nina also does some “yoga” with some little kids that they call a “Sprout Stretch.” The other night, it was basically doing I’m a Little Teapot but without the singing. And, Nina can speak a little Spanish, so she teaches Star a word in Spanish every day. They do a craft too, but not usually during the stretch I’m watching with the kids.

Maybe I’ve watched Death to Smoochy one too many times, but I feel like Nina’s in on the joke when I watch her. Like, sometimes she’ll look at Star or the camera or whatever, and she just gets this look that says “Yeah, I know how silly this is, I’m talking a puppet.” Like she’s stifling a laugh. I feel like if I met Nina in person a cocktail party, she’d be cool, and not like Uncle Fran. (No seriously, you HAVE to click on that link, it’s so awesomely inappropriate! But make the kids leave the room first. God, I miss Almost Live.)

The Good Night Show was actually one of The Boy’s favorites when he was The Girl’s age, and I think that’s because he was in love with Nina, the host. She’s gorgeous but in a non-threatening way. What I love about Nina is that she’s soothing. Because, it’s bed time. I don’t need Dora screaming at my toddler and winding her all up when it’s time to go to sleep, I need someone calm. The Sprout Stretch is not aerobic exercise, it’s a stretch. She sits calmly on the couch and talks. She smiles a lot but isn’t bouncy. It’s relaxing after a long day to see calm, pleasant Nina on my TV screen.

And now I feel so calm, I need a little nap. Thanks, Nina!

How We Talk To The Boy About His ADHD

I’ve never been the kind of parent to tiptoe around a subject with my kids. Like, when The Boy asked me in the car one day (Mother’s Day, actually, he was just about to turn 6) how a baby gets into a mom’s tummy in the first place, I said, “This is probably going to sound weird, but it’s the truth: grown ups do something called sex, and what that is, is, a man sticks his penis inside a woman’s vagina, and then some stuff squirts out of the penis, and it mixes with an egg inside the woman. But the egg is tiny, not like a chicken egg, it’s just a little speck, and then it grows slowly over time into a baby. Sex is something grown-ups do, not kids, and it’s also a topic that can make parents feel uncomfortable, so it’s a good idea not to talk to your friends at school about it. Let their parents tell them, OK?” And The Boy was like, “Huh. OK.” The Hubs helpfully pointed out that the stuff that comes out of the penis is called semen and it’s little tiny things in the semen called sperm that do the mixing with the egg. And I was like, “Oh, good point, The Hubs.”

Did I feel mildly weird about it? Sure, I mean, I don’t talk about semen and vaginas every day, and certainly not to a kid, so it did feel a little outside my comfort zone. But it would have felt weirder to be like “We’ll tell you when you’re older” or “That’s private” or “There’s a magical stork that does it.” I just find that the best way to handle a situation with my kids is to tell them the truth, in as straight-forward a way as I can, instead of tiptoeing around it. It’s like ripping off the bandaid, there’s some minor discomfort for a second but I feel a lot better in the long run.

So, we’ve done the same with The Boy’s ADHD. The day he got diagnosed, we sat him down and I said, “So, remember when we talked to your doctor about how you have trouble focusing in class? Well, he suggested that we talk to one of the people who works in his office to see if they think you have something different about your brain that’s making it harder for you to concentrate—it’s called ADHD. And the person DOES think you have it, and thinks that maybe there’s a medicine you can take that’ll make it easier for you to focus. So, we’re going to try out the medicine starting tomorrow, and see if it helps.” And he was like, “What’s the thing called again? That they think I might have?” And I said, “It’s ADHD, which stands for Attention Deficit Hyperactivity Disorder. It’s basically a fancy way of saying your brain works a little differently and that makes it hard to concentrate.” And he was like “Huh. OK.”

The next day, we checked in with him quite a bit about how he was feeling on the meds—we’re obviously a little worried about side effects, and we wanted to make sure it was working. At one point, The Boy and I were sitting at a table while he ate lunch and I said, “So, how does your brain feel today?” and he said, “I can focus better.” And I said, “That’s great!” And he said, “I like learning about how my brain works. Like Rudy did.” And I said, “Sure, Rudy learned about his dyslexia and that made it easier for him to learn, huh?” And he said, “Yeah, I like that.” YES! We always talk about Rudy and his dyslexia when we watch that movie, and how he had to learn about how his brain works differently, and how much easier it was for him to learn after he knew how his brain worked. It made me so happy to see him make that connection to his own brain, because Rudy really is one of his heroes.

Last week, The Boy asked me if we knew anyone else who has ADHD. And I told him about one of our adult friends who has it. I said, “In fact, she told me she takes the same medicine as you. Would you want to maybe talk to her about it sometime?” And he said, “Yeah!” And I said, “She told me when she started taking the medicine, she felt like everything was buzzing. Like, everything around her. Did you feel like that?” And he said, “No. That’s awkward.” (That’s one of his favorite words now.) And I said, “Well, I’m glad you didn’t feel that way. You know, maybe we could do a play date with her and her kids, and you could chat with her about ADHD.” And he was like, “Yeah, that sounds great!”

The other night, after The Boy’s meds had worn off for the day, I sat down with him for reading time, and man, it was brutal. He was resistant to even trying to read a book he’d picked out at the book store that weekend (it was a Star Wars Angry Birds book, so, definitely one I knew he’d like). So I said, “Sweetie, is it hard for you to focus now that the meds have worn off for the day?” And he said, “Yeah, it is.” And then IMMEDIATELY calmed down, and was ready to try to read. It was like the frustration just melted away. We got a couple pages in and it was clear he was really struggling to focus—his eyes were darting all over the page instead of looking at the words, and the book was already one that was pushing the boundaries of his reading ability. So then I said, “How about we try this other book that you’ve read already, since it’s hard for you to focus right now? Would that be better?” And he said, “Yeah, that would be better.” And he was able to pull it together to read the other book to me.

What I took away from that experience was this: when The Boy struggles with focus, it can make him feel VERY frustrated. But he’s not yet at a point where he realizes that his ADHD symptoms are why he’s frustrated. So, if we talk about it, name it, openly and without shame, then he isn’t so down on himself. He can say, “Oh, this is because my brain is working differently” and then the layer of frustration with himself that goes on top of the layer of inattention is peeled away. When he understands why he’s struggling, he doesn’t feel so shitty about struggling—he knows there’s a reason why it’s happening, and that it’ll be better the next day when he’s taken his meds again. Just like I feel better now that I know what’s going on with him, because I know it’s not some fault in my parenting that’s making him struggle, and I know how to help him struggle less.

I also learned that reading a brand new difficult-for-him book after his meds have worn off is probably a really dumb idea that I won’t be repeating! Duh!

Cocktails with the Cult: The Thin Mint

Last year, I threw a big cocktail party at our house as a fundraiser for the March of Dimes. I raise money for the March of Dimes every year because their volunteers helped us get through the NICU experience (it was a March of Dimes parent volunteer who introduced me to the concept of the pump and dump when I really wanted a cocktail during those dark days) and because the research they’ve funded over the years probably helped save The Boy’s life. What’s that, you say? You want to make a donation to our family team in this year’s March for Babies? Well, isn’t that sweet of you! CLICK HERE!

Wait a minute. Is this a cocktail recipe or a fundraising pitch? Hahaha, it’s both!

Now, where was I…oh yes, cocktail fundraiser. Being a lifetime member of Girl Scouts, I know how much people love Girl Scout cookies and how they jones for them after the sale is over. I figured people would pony up a nice fatty donation to have the chance to come to a cocktail party at our place that featured Girl Scout cookies AND booze after the sale was over, when it was too late to buy cookies. So, I bought a zillion Girl Scout cookies, and began surfing the Internet for Girl Scout cookie cocktails, and created a Facebook event, et voila! We had several hundred bucks for the March of Dimes and a lot of happy friends. It was AWESOME.

The cocktail that was the biggest hit of the evening was the Thin Mint (although the Samoa cocktail was also well-loved, but since we just had a delicious coconut cocktail last time here on the blog, you’ll just have to learn about that recipe next year!). You’re gonna love this. It’s strong and sweet and looks amazing. But you’re gonna need some supplies. This is a fancy drink for a special event, not a toss-it-together-when-feeling-lazy cocktail. OK, here goes.

First off, the glass. You want to get some chocolate syrup–good stuff if you can afford it. I went with Dilettante’s chocolate syrup–they’re a local company that makes amazing chocolates, and if you’re ever in the Seattle airport, you should get a mocha from their stand instead of the Starbucks at the food court. Shorter line, better mocha. Alright, so, pour the chocolate syrup in a puddle on a plate and dip the rim in it.

Then you need some crushed up Thin Mint cookies. Smash them in a plastic bag with a mallet, run them through a food processor, whatever. Then put them on a plate too and dip the chocolatey rim in the cookies.

Now the drink. I actually made pitchers of this, so I could just pour some in a glass to serve, but here’s the recipe for one drink:

2 oz. chocolate mint liqueur (I used Crave brand)
1 oz. vanilla vodka
2-3 splashes chocolate bitters

If you’re making an individual drink, you can shaker this one, but since I used pitchers, I just stirred it.

This one is deceptively strong. You’re gonna need a designated driver, you guys, I’m not kidding–especially because it’s so amazingly good, you may be tempted to have more than one! Cheers!

Talking Down

When The Boy was in the NICU, the room he was in had 6 babies in it. (They didn’t have private rooms, just areas they could screen off around each incubator. This meant that you got to know the other families, which was great–some of them are still his friends today.) The first couple of weeks, all the kids in his room were boys, and then one day, a girl moved in. I don’t remember her name, but the nurses all joked that The Boy had a girlfriend now. Except, the girl wasn’t like the other kids in The Boy’s room–she screamed a lot.

Preemies don’t scream a ton–if they’re on a ventilator, it’s not physically possible, and if they’re not, they just sleep so much because they’re really busy doing all the growing they would have done in utero, which is a LOT of growing. And it’s much harder work to do it in an incubator than in the womb, so they just need a ton of rest.

But there are lots of reasons why a baby might end up in the NICU besides prematurity. For example, I have a friend whose son was born full-term but with situs inversus, like The Boy has, and they kept him in the NICU for several days after he was born to try to make sure his abdominal organs worked properly and he wasn’t going to need surgery. Babies with birth defects often end up in the NICU. And I know tons of people whose full-term babies had jaundice that required a hospitalization.

And then there’s the drug-addicted kids. The Boy’s Girlfriend was one of those kids, and that’s why she screamed so much. I mean, I’m not an addiction specialist, but I’ve read enough about it to know that detoxing feels pretty shitty. And when babies feel shitty, they scream. Which is why The Boy’s Girlfriend was screaming. How do I know that’s what was going on and it wasn’t some other medical condition that made her feel shitty? Because her mom was clearly, obviously, visibly high when she visited the baby in the NICU. And because the grandma openly discussed it in the family waiting room. After a few days of screaming, The Boy’s Girlfriend stopped screaming, and then she went home with her grandma.

I noticed during our time in the NICU that the staff spoke to the drug-addicted parents differently than they spoke to us. The spoke to us more collegially, more as team mates or peers. Whereas, parents that they didn’t see as stable, the staff tended to speak to in a more didactic style. For example, the doctors and nurses tended to go into more detail when explaining what was going on with The Boy, and they dug deeper into how he was progressing and how it compared to an average 27-weeker.

I get why a NICU team might not throw all the details at a parent who’s clearly high as a kite. I mean, I’ve never used drugs, but I’m betting that a woman who just gave birth and is high is probably not going to be capable of processing all the information that’s available in a NICU. It’s hard enough to understand it all when you aren’t high. But also, I think they felt protective of the kids under their care, and were worried what would happen to them when they left, which has to make it hard connect to parents who were so clearly unstable and might not even be the one raising that child after discharge. With us, who they could tell were going to take good care of The Boy when he went home, they were more open about why they were doing a procedure a certain way, or why the doctor had chosen a certain respiratory intervention, or whatever. They embraced us as partners in his care, and we became friends. And they were very supportive of us–they asked us how we were feeling and just did the things that friends do when they know you’re hurting. I would imagine it’s hard to build that kind of relationship with someone who’s high, and who you know might not even be the one who ends up being the care-giver for that baby after discharge.

I’ve noticed the same didactic style when dealing with some other medical professionals, particularly with specialists who don’t see us as often and don’t have the chance to build a rapport with us. And actually, so have some other preemie moms I’ve spoken to. One of my preemie mom friends told me recently that she had a particularly stressful appointment with a specialist for her son. She left the appointment feeling awful, and threatened–that if her son didn’t improve in a certain area, then the doctor would punish them with a more serious medical intervention. I’m sure the doctor didn’t mean for it to come across that way, but I’ve actually had the same feeling with some doctors myself. It’s as though they blame the parents for the child’s medical conditions, rather than seeing the parents as teammates in trying to help the child thrive.

That “threat” of bigger interventions is actually one of my pet peeves from my time on bed rest before The Boy was born. When one of the NICU docs (the only one without great people skills, as it happened) came to talk to me about what the NICU was like and the statistics on outcomes for preemies, it felt like she was saying “You better keep that baby cooking in there, or else.” But, that presumes I have any control over when  my body goes into labor. Like if I just want it bad enough, I can choose when my baby is born? Uh, no, I can’t. And of course, I wasn’t on hospital bed rest for long before I DID go into labor. And then I got to feel guilty about that too, as though it was somehow my fault that I couldn’t stay on bed rest longer. And we wonder why preemie moms need therapy to get past their feelings of guilt over their child’s birth? It would have helped if that doctor had said “I hope your body cooperates, but we know it might not, and that’s not your fault.”

As if that wasn’t enough to make you feel like crap, one of the worst parts about having a kid in the NICU is not being able to parent them the way other parents can. You can’t just pick up your baby and hold him or her when they’re hooked up to machines and in an incubator. So, a lot of NICU parents don’t feel like “real” parents. And that means that when a NICU staffer talks down to you, or otherwise limits your authority as a parent, it really hurts. My worst memories from the NICU involve the very few nurses who limited our involvement in The Boy’s care. On my darkest PTSD days, that’s the feeling that I re-live, and I find myself thinking of all the things I want to say to them, or rather, scream at them. And when a specialist talks to me that way now, I still feel that “you are not a real parent” feeling. It’s really painful.

If you’re a medical professional and you’re talking to a parent whose child is not well, I hope you’ll think a bit about whether you’re speaking to those parents as partners in that child’s care, the way most of the NICU nurses did with us. If you aren’t, I hope you’ll start. And if you are, I want to say thank you–medical staff like you make it possible for parents like me to get through the tough times with our kids.